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In over our heads
Seeing we just returned from Florida on Saturday, May 22, regular testing at the Clinic on Monday and meeting with my long-time pediatric hepatologist on Tuesday was a little stressful. Then, we found...
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Liver Transplant Update #7: Sunday – Getting Better!
Typing this on my iPhone because we are not sure which bag my iPad is in, and getting out my laptop seems like a lot of work (okay, and I’m not sure which bag it’s in either – funny how I couldn’t care...
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2 months
It’s been two months since my liver transplant, and I can’t believe where I’ve been during these past 8 weeks. I can’t believe what I’ve been through, the support I’ve been shown, and how wonderful...
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Rejection
I should have known. For probably around a month now, my vastly improved, post-transplant state of existence has been declining. I have been so tired, so utterly exhausted. I blamed a medication I...
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Threats
I packed my hospital bags today… My “day bag” for Thursday’s biopsy/testing as well as my “long stay” bag just in case. I’ve been through the ups and downs of illness for so many years that I’ve...
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Biopsy results – Part 2
Like I said in my last post, the biopsy (last Thursday) showed nonspecific inflammatory changes, but no rejection or bile duct damage. That’s great. However, they found the Epstein-Barr Virus in my...
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